A CHARITY founder has hailed a breakthrough in the treatment of the condition that has left both her daughter and step daughter immobile and unable to speak.

Rachael and Andy Stevenson from Burtonwood set up Reverse Rett in 2010 to fight Rett syndrome, a life-limiting neurological condition affecting their two daughters, now aged 21 and 16.

Now, the first clinical drug trial for Rett syndrome has begun with no cure for the condition, which causes multiple disabilities and lifelong medical complexities, currently existing.

The 24-week study will be led by Dr Paramala Santosh at the King’s College Hospital in London, with patients being sought to take part.

Rachael said: “We are in a race against time with Rett syndrome.

“My daughter is 21 and I want her to benefit from advances in science before it is too late.

“This study opens the door for UK patients to access emerging treatments in the time frame that this devastating condition demands.

“Every day people with Rett syndrome are plagued with difficult symptoms for which they desperately need treatment now.

“This study represents the first time that UK will be contributing to data which may be used for the licensing of a medication for Rett syndrome.

“We congratulate Dr Santosh and his team on their achievements and look forward to our continued work together to improve the lives of people with Rett syndrome in the UK and beyond.”

Anyone interested in the study should email rachael@reverserett.org.uk.