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What an eye opener!

11:37am Friday 23rd May 2008

Last week i went on a course for parents of visually impaired children, it was SUCH an eye opener ( pardon the pun! ) Firstly , we were asked to wear glasses which simulated partial sight, we then had to sit around a table and wearing these glasses were asked to make some breakfast! The plates, bowls, cuttlery were white, on a white tablecloth, etc..., I couldn't have imagined how difficult that would be until this moment! It was SOOOO difficult! It really made you realise how much you must rely on the people sat around you to help you with things and pass you things but of course when you asked for things people kept saying here it is ...... WHERE!!?!?!? lol the end result was very messy but really brought home to us how difficult the things we take for granted are, I felt quite emotional at this.

Negative and Offensive?

11:34am Friday 23rd May 2008

After a recent blog comment I set to wondering about how things are perceived over the internet.

Hot stuff

2:57pm Friday 9th May 2008

It is sooooooooooo hot ! Although really it's hardly soaring heat but i am so not used to it that it feels like it ! lol This weather change has brought a few changes of our own ! Last summer was pretty pants anyway ! plus as we were still getting to grips with all of Charlie's problems we didn't really get out that much ! This year i am making much more effort to get out there and not be a hermit ! But this in turn is soooooo difficult ! Charlie's Albinism means we have to be SO SO careful in the sun ! He hates wearing his glasses so getting him to wear his tinted ones has been a real battle but he is in so much pain when it is bright and i think he might finally be learning that they do help and aren't as evil as he first thought ;-) lol His sleeping has been so bad this week ! well even worse than usual lol he was going at least 1.5 to 2 hours between waking up at night but this week it's been half of that ! I think it is a mixture of the heat and being more stressed out than usual with his eyes etc , plus being for another fitting this week for his protective helmet that can't come quick enough so it's been a bit of a mad week for him.

Everyone is an expert

4:51pm Wednesday 2nd April 2008

I know I have blogged before about the everyone having an opinion thing but here we go again!

Improvements...

4:52pm Tuesday 1st April 2008

Well I haven't blogged for what seems like ages! to be honest I just haven't had the time!

Results

3:10pm Friday 18th January 2008

Well we have just had the results back from the electrodiagnostics we had redone at Alder hey a few weeks ago.

Charlie

11:41am Saturday 5th January 2008

Over christmas i managed to get an appointment with Charlies peadiatrician, there have been some things worrying me for a while , but everytime i spoke about them i generally got the same response that it's just a phase .... they all do it .... etc etc ... but i dunno , something felt wrong , can't really describe it ! maybe its the old "mothers instinct"

Christmas time

11:40am Wednesday 2nd January 2008

Haven't blogged for a few weeks , it has been MANIC!

Give me some good luck please!

3:35pm Tuesday 30th October 2007

The house has been like a sick bay the last couple of weeks !

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