"I’M just hoping I’m in remission for the next 50 years...or until they can find a cure.”

Those are the words of mum-of-two Nic Kinley-Morgan who, after being diagnosed with an extremely rare form of brain stem tumour in May 2011, was told there was nothing else doctors could do for her.

The Warrington Guardian reported last year family and friends of the former Penketh High School pupil rallied around her and started fundraising after identifying pioneering treatment in Texas as the only thing that could help.

More than £90,000 has been raised to date but Nic and her interior designer husband Ceri, who married in May, are so far thankful they have not had to use the cash while Nic remains in remission.

The 39-year-old mum to Mae, aged 10, and Finn, aged seven, said: “When I had radiotherapy in 2011, I was told there was only a 10 per cent chance it could control it and it would only be temporary for nine to 18 months.

“It’s over 18 months now so I’m lucky to be where I am at the minute but nobody knows what will happen as it’s so rare.”

The positive-thinking mum now has regular scans to check the tumour has not come back and says using homeopathic remedies is helping her feel better.

She added: “I try to get on with life and don’t dwell on it or ever mention the word but it’s always there in the back of your mind that it could come back.

“I start to panic when I get headaches or feel stiff as that’s how it started.

“We wanted to kick it while it was down but after speaking to a consultant we were advised no treatment would work if the tumour isn’t active.

“If it became active we would have to get over to America quickly and wouldn’t have the time to raise the cash.”

Despite some criticisms of the treatment, the couple, who now live in Manchester, have been in touch with a woman whose tumour has disappeared after the treatment giving them hope if they ever need it.

Nic added: “If you’re hearing good things like that, you’ve got to give it a go when you’re in our position.

“It’s a strange situation sitting waiting to be ill again when I don’t want to be ill again.

“People raise money for us and I thank them very much but I hope I don’t have to use it.

“Everybody that has raised funds have been amazing and we’re so humbled by it all.”

If the family never have to use the cash for treatment, money raised will be donated to brain tumour research.

Visit nicsroadtorecovery.co.uk.