It is sooooooooooo hot ! Although really it's hardly soaring heat but i am so not used to it that it feels like it ! lol
This weather change has brought a few changes of our own ! Last summer was pretty pants anyway ! plus as we were still getting to grips with all of Charlie's problems we didn't really get out that much ! This year i am making much more effort to get out there and not be a hermit ! But this in turn is soooooo difficult ! Charlie's Albinism means we have to be SO SO careful in the sun ! He hates wearing his glasses so getting him to wear his tinted ones has been a real battle but he is in so much pain when it is bright and i think he might finally be learning that they do help and aren't as evil as he first thought ;-) lol
His sleeping has been so bad this week ! well even worse than usual lol he was going at least 1.5 to 2 hours between waking up at night but this week it's been half of that ! I think it is a mixture of the heat and being more stressed out than usual with his eyes etc , plus being for another fitting this week for his protective helmet that can't come quick enough so it's been a bit of a mad week for him.
Over christmas i managed to get an appointment with Charlies peadiatrician, there have been some things worrying me for a while , but everytime i spoke about them i generally got the same response that it's just a phase .... they all do it .... etc etc ... but i dunno , something felt wrong , can't really describe it ! maybe its the old "mothers instinct"
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